We need help.

Its about time the health professionals got to grips with ehlers danlos syndrome. After all it was discovered in 1963 so by now, surely, it should not be such a mystery to the medical people who should know all about it. Its a complex subject I know, and there are many different types, but if you have it, its no joke, and it would be nice to be able to discuss options such as exercise and pain relief without the medical doctor looking at you as though they do not believe what you are saying. It is very isolating, personally I have suffered in various different ways for many years, and now my arthritis in lots of my joints is a real bugbear for me, it is very debilitating and I often feel trapped within the confines of my own body. As it does not show, like a broken arm or leg, people are unaware of the problems faced by those with this illness but they are very real, and very painful. Ehlers danlos syndrome is a problem with collegan in the body and joints wear too quickly as they are overused, it can affect internal organs, eyes, ears, heart, you name it. Please medical fraternity, do some research, we need help!