I don`t want to be this way.

I am really struggling, normally I put a face on things and pretend I am fine so that not many people realise how bad I am with walking and with the pain I have to put up with, but lately I am finding it harder and harder to pretend. I am not all right, I am in pain all the time, and just walking around my house is a problem for me, my back is painful, my hips hurt and the pain is wearing me out. My knees hurt, my ankles give way and my feet are painful, the toes seem to contract, its very strange and very painful. Even my fingers are giving me problems, the knuckles are swollen and hurt, I am no longer able to get my rings on the correct fingers as I cannot get them past my knuckles! My left shoulder grinds and crunches and is very painful and it seems to affect my arms which seem heavy and which hurt. I really don`t know what to do about it, and how to cope, to be honest, everything is getting on top of me. I never thought I would say this, but I can see myself ending up in a wheelchair, my walking leaves an awful lot to be desired, there seems no end to this pain, medication does not help, or not much, I see people walk past me who are much much older than myself and I feel awful, I am 56 years old and I don`t want to be this way.

Everything hurts - Ehlers danlos hypermobility syndrome.

Everything is hurting at the moment, my left knee keeps on giving way, I keep going over on my ankle and my back is giving me some real problems, why do I have all these things go at once? I am thinking it is because when my knee gives me problems I must walk in a slightly different way to compensate which in turns causes my ankle to give way and then ofcourse my spine is out of alignment and that hurts too. My left shoulder is so painful at the moment that I am having a problem lying on that side, but when I turn over to lie on my right side my hips sublaxes and I am in pain with that! I had to lie on my back the other night, never a good position for me, my legs go completely numb and I cannot feel them so when I try and get up it is a real struggle! Just to add to my problems my internal organs play me up, mainly my bowel, whether it is a result of ehlers danlos hypermobility syndrome I am not sure, but having read some reports on their website about this very problem I would not be surprised. I have told my doctor quite a few times about the trouble I am having but he just prescribes loperamide which I have been taking for quite some time. I think I get immune to it after a while as it stops working properly and I am back to square one, so I have to stop using it for a while and then I am confined to the house - I won`t go into details, use your imagination! Its not nice. All in all this EDHS is not nice, I am in pain 24/7 and often a new pain will pop up unexpectedly and sometimes an old pain will fade, whether due to the joint going back into place or something else I`m not sure. I never know what the next day will bring, and not in a nice way.